Psarah Alice Johnson

May 16,1976 – April 29, 2022

Psarah was unfairly taken from us on April 29, 2022.

Meet Psarah Johnson

A self-identifying “cripplepunk,” Psarah Johnson is a community activist who was born with Juvenile Rheumatoid Arthritis and since then has spent her life collecting autoimmune disorders.

Besides the addition of Psarah’s obituary and her one-woman show highlighting the intimate struggles of chronic illness, “Matchstick Theory,” her website remains largely as it was at the time of her passing.

New work published in New World Coming
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Please bookmark this page and return to it often, as we will be maintaining and adding to it often.

See Psarah Speak

What Don’t You Know About Physical Disabilities

The Unknown Realities of Being a Community Activist

Resilience: How to Win an Unwinnable War

Meet Psarah Johnson

A self-identifying “cripplepunk,” Psarah Johnson is a community activist who was born with Juvenile Rheumatoid Arthritis and since then has spent her life collecting autoimmune disorders.

New work published in New World Coming Get your copy today

Introducing Matchbook Theory

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PERSONAL STATEMENT

Having been born disabled at a time when no pediatricians and few rheumatologists even considered arthritis a childhood condition, one could say I have been a lifelong and passionate disability advocate and pioneer. After all, it was an act of defiance when, as an infant, I refused to do the prescribed exercises for cerebral palsy.

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